Tag Archives: Kidney Foundation of Canada

Infographics about Kidney Disease and Organ Donation

Here are a couple of recently published “infographics” that contain some stark information about kidney disease and organ donation, courtesy of the Kidney Foundation of Canada. Given the increasing prevalence of organ failure in general and kidney disease in particular, it’s quite likely that this is more than mere statistics. Beyond myself, you may very well know someone else among your friends and extended family who is dealing with a disease that may ultimately lead to life-threatening organ failure.

Thanks for your support,

Russ Sawatsky

London Kidney Walk 2016

This weekend, Sunday, September 25, I will be walking in the London edition of the Kidney Walk, a fundraiser for the Kidney Foundation of Canada. Last year was the first time I participated in the Walk. In fact, I hadn’t been aware of it previously, despite 30+ years of living with kidney disease. This weekend, Friday, September 23, to be precise, will also mark eight weeks since I received my transplant.

And, as long as I am marking significant events, this past Monday, my friend Gerald donated one of his kidneys as part of the Paired Kidney Donation program run by Canadian Blood Services. His donation, although after my own surgery, made it possible for me to receive a new kidney. I had the pleasure of phoning him and his wife yesterday, Tuesday, the day after his surgery, and he sounded just fine! Praise God for his tremendous gift. I wouldn’t be where I am now without his generosity.

I’ve made a lot of progress in the last nearly eight weeks, but I still have a ways to go. I get tired very quickly, and a little bit of exertion brings out the sweat in buckets. On the positive side, walking is not that difficult. I’ve already walked more than half an hour at a time on several occasions, so I don’t anticipate any problems with the Kidney Walk. Again, I’ve made progress. Take a look at my vigorous steps two days after my surgery (video courtesy of my long-suffering wife, Etsuko):

With respect to the Kidney Walk, if you are interested in sponsoring me, there is still time to do so online here: Welcome to Russell Sawatsky’s page.

Thanks so much to all those who have already been so generous either with donations or with words of encouragement. They have meant a great deal to me and my family.

How long will a transplanted kidney last?

Transplant science is making progress year after year, but one thing that does give me pause when I contemplate receiving a transplanted kidney is the awareness that a transplant will eventually fail. The worst case scenario is that the transplant fails immediately, which, although rare, does happen. Sometimes a transplanted kidney lives for quite a long time, but a long time does not usually mean more than 20 years, and even that period of time is usually only in the case of a kidney from a living donor.

It therefore came as a bit of a surprise, and gave me not a little more hope, when I came across this article about a man who received a kidney from a deceased donor that has lasted 40 years!

Here’s the article, from CTV News Winnipeg.

Kidney transplant recipient celebrates 40 years since donation

By sharing his story, Perras and the Kidney Foundation of Canada hope to encourage more people to sign up to be an organ donor.

By sharing his story, Perras and the Kidney Foundation of Canada hope to encourage more people to sign up to be an organ donor.

Cameron MacLean, CTV Winnipeg
Published Thursday, May 26, 2016 1:40PM CST

Adrien Perras has beaten the odds by surviving 40 years after receiving a kidney transplant in 1976.

The Kidney Foundation of Canada said the average lifespan for a kidney transplant is 25 years. Only one per cent of transplant patients live as long as Perras.

At 21, Perras was a university student when he started feeling lethargic all the time.

“I’d sit down to study and fall asleep for two hours,” he said.

Doctors at the Health Sciences Centre ran some tests and booked an appointment a few days later. Perras missed the appointment, and a few hours later received a call, telling him to get down to the hospital immediately.

Doctors told him his kidneys were “shot,” Perras said. When he got the news, Perras said he almost couldn’t believe it.

“You almost want to call BS on it,” he said.

Perras chokes up when he recounts telling his mother about the diagnosis.

“That was tough, cause I was her oldest son and she just had so many hopes for (me).”

A kidney donor couldn’t be found immediately, so Perras started preparing to go on dialysis while his name was put on a waiting list. However, only a few days before he was set to start dialysis, Perras got the call that a donor had been found.

“It just blew me away,” he said. “Fortunate doesn’t come into it. It’s almost miraculous, let’s use that word.”

Click here to read the rest of the article.

 

World Kidney Day

Today is World Kidney Day.

Here is the press release for the Day, which this year emphasizes kidney disease and children:

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WorldKidneyDayLogo

 

Kidney Disease & Children – Act early to prevent it.

Support WKD by moving your feet!

Brussels, February 22, 2016 – 10% of the population worldwide is impacted by some form of kidney damage.

On Thursday March 10th we are celebrating the 11th edition of World Kidney Day (WKD), a joint initiative organized by the International Society of Nephrology (ISN) and the International Federation of Kidney Foundations (IFKF). WKD is the most widely celebrated event focused on kidney health across the globe. This year’s theme “Kidney Disease and Children” reminds us that we must all think about our kidneys from an early age and that much adult renal disease is actually initiated in childhood.

With 10% of the population worldwide having some form of kidney damage, there is a long road ahead to raise awareness about the dangers of kidney disease. The latest numbers show that Chronic Kidney Disease (CKD) is predicted to increase by 17% over the next decade and is now recognized by WHO and other organizations as a global public health issue.
Kidney diseases affect millions of people worldwide, including many children. Some children are born with kidney disease and others develop it when still very young. The symptoms of kidney disease in children are often nonspecific, which means that there is a risk that kidney problems may be missed in children. In childhood the leading causes of kidney failure in children are hereditary conditions, often lacking obvious indicators such as hematuria (red blood cells in the urine), hypertension (high blood pressure) or edema (swelling). Additionally, kidney disease that becomes evident in adulthood may occur more often in persons with risk factors that can be detected in childhood.
It is therefore crucial that we encourage and facilitate education, early detection and a healthy life style in children, starting at birth and continuing through to old age, to combat the increase of preventable kidney damage including Acute Kidney Injury (AKI) and CKD and to treat children with inborn and acquired disorders of the kidney

Julie Ingelfinger, MD, Professor of Pediatrics at Harvard Medical School and Senior Consultant in Pediatric Nephrology at MassGeneral Hospital for Children, underlines the importance of CKD awareness and prevention from early age on: “It is important to be aware of and to detect pediatric kidney disease. Kidney disease can be treated, even in our smallest patients. Further, because much of adult kidney disease has its roots in childhood, it is critical to focus on infancy and childhood if we are to prevent and cure kidney diseases.“

On World Kidney Day, move your feet! – Keeping fit reduces high blood pressure and obesity, two of the leading causes of kidney disease.

This is why, leading up to March 10 and beyond, we encourage civil society, decision-makers, health ministries and professionals as well as patients to move their feet for healthy kidneys. This gesture is a vivid reminder that regular exercise and physical activity help to reduce the risk of developing kidney disease. Moving our feet is a simple yet powerful action that creates a link between our health and our daily routine.
Show your support online globally – Building on the great success of our WKD campaigns over the last years, which included over 560 reported events taking place in more than 90 countries and 50 million people talking about WKD through the campaign hashtag #worldkidneyday in 2015, we call on our community to share their activities, messages and pictures online and get involved in the fight against kidney disease. For more information and details about World Kidney Day events worldwide – please see www.worldkidneyday.org
Participants can send us messages and their pictures, using #moveyourfeet4WKD.

About the organizers of World Kidney Day:

World Kidney Day is a joint initiative of the International Society of Nephrology (ISN) and the International Federation of Kidney Foundations (IFKF).

Founded in 1960, the International Society of Nephrology (ISN) is a global not-for-profit society dedicated to improving kidney care and reducing the incidence and impact of kidney disease worldwide. Through its global network and programs, ISN brings together the developing and developed world in a collaborative effort in fighting and treating kidney disease on a global scale.

More information on www.theisn.org.

The International Federation of Kidney Foundations (IFKF), a not-for-profit Federation founded in 1999, currently has a membership of 63 kidney foundations and patient groups in 41 countries. IFKF advocates worldwide to improve the health, well-being and quality of life of individuals with kidney disease; disseminates standards of best practice of treatment and care; assists with the establishment of kidney foundations in countries where they do not yet exist; facilitates educational programs for it members; and promotes kidney disease research.

More information on www.ifkf.org.
World Kidney Day Official Partners

World Kidney Day is grateful to the generous support of its global corporate contributors who help us make this day of global action possible. Thanks very much to:

  • Our WKD Partners:  AstraZeneca, Danone, Sanofi Renal
  • Our WKD Supporters: Amgen
  • Our WKD Benefactors: Alexion, Baxter, Fresenius Medical Care, and Intuitive Surgical

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There is a variety of events taking place, many of which might not occur in your immediate neighbourhood, but one thing you can easily do, if you haven’t already, is to register as an organ donor. In Ontario go to beadonor.ca.

Thanks,

Russ

Most people who need a new kidney die on the waiting list

Cheryl and Mike Simoens

Cheryl and Mike Simoens

I’m posting links to two articles about Cheryl Simoens, a 32-year-old, who is receiving a kidney from her brother 20 years after receiving a first transplant from her father. The first article, from the Winnipeg Free Press, contains the stark line that I used for the title of this post. The second article, from CTV News, raises the controversial subject of presumed consent but also describes the minimally invasive laparoscopic surgery that will be used to remove the kidney from the kidney donor, Cheryl’s brother, Michael Simoens.

Woman who is getting kidney from brother raises awareness about organ donation

First, her dad gave her a kidney, allowing Cheryl Simoens to grow up to be a half-marathoner and avid rock-climber.

Now, nearly 20 years later, it’s Simoens’ brother who is stepping up, donating his kidney to save his sister’s life.

“I feel incredibly grateful to have family members who are willing to donate an organ so selflessly,” Simoens, 32, said in a statement. “It is an indescribable feeling to be given the chance to get your life back and I am overwhelmed with joy to be able to live life to the fullest once again.”

This evening, the Simoens siblings will speak with the media in an effort to raise awareness about organ donation. Most people who need a new kidney die on the waiting list. In Manitoba, the typical wait is 5.5 to seven years for an available organ. In 2014, there were only seven kidney donations from deceased donors in Manitoba, and donation rates are “stagnating,” according to the local branch of the Kidney Foundation of Canada.

To read more of this article, click here.

Brother donates kidney to save sister

Huddled around a photo album, the Simoens family takes a timely look back at a day that changed their lives.

Twenty years ago, dad Ronald became a living kidney donor for his daughter, Cheryl. At the time, the young girl had already lived 11 years with Cystinosis; a chronic and genetic kidney disease.

“I was diagnosed at 15-months-old and rushed to the hospital many, many times. Very dehydrated, very listless and general failure to thrive,” said Simoens.

That changed with medication, and became a distant memory after the first transplant.

“We didn’t realize how suppressed her personality was because she was so sick for so long. But after the transplant, her personality just exploded and she started talking back,” said older brother, Michael.

Now 32, Simoens is active; taking on rock climbing competitions and setting her sights on a half iron-man. But in August 2015, things slowed down again when her kidneys began to fail once more.

To read more of this article, click here.

Since this is an article from Winnipeg, here is the link to register as a donor in Manitoba.

I welcome your comments. In particular, what do you think of the idea of presumed consent, “where every Manitoban of adult age would be an organ donor unless they decided to opt out”?

 

Syrian refugee could save Edmonton sister in need of kidney transplant

I just had to repost this article from The Globe and Mail. 1. It’s about the refugee crisis. 2. It’s about kidney donation. 3. Mennonites are involved! Please read it.

Syrian refugee could save Edmonton sister in need of kidney transplant

The Globe and Mail

The 2015 Kidney Walk is History

Thanks once again for all your support. The London, Ontario edition of the 2015 Kidney Walk fundraiser for the Kidney Foundation of Canada is now history. Having never been to any other kidney support types of events, it was a rather sobering experience to see all the people come out for the walk, all wearing signs that said, “I’m walking for…” someone they knew with kidney disease or for themselves personally.

The Kidney Walkers

The Kidney Walkers

A highlight was to hear a brief presentation from a woman who had received a transplant a mere 13 weeks earlier, followed by a tearful speech from the woman who actually donated the kidney. It was great to see them both looking so healthy.

A sobering image that will stick with me was the quilted images of those who had donated organs as a result of life-ending incident, The Gift of Life Donors.

The Gift of Life Donors

The Gift of Life Donors

Another special highlight for me was that my wife, Etsuko, and two of my children, Rika and Aisha, were able to accompany me on the walk, wearing signs that said, respectively, “I’m walking for my husband,” and “I’m walking for my dad.” I’ll admit to feeling a bit weepy when I see this photo.

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Left to right: daughter Rika, wife Etsuko, daughter Aisha

When I announced that I was going to go on this fundraising walk, and invited sponsoring donations, I hoped for a total of only three hundred dollars, of which I was going to contribute one hundred dollars. Much to my surprise and delight, I was the top individual fundraiser, bringing in a total of $1,915 by the morning of the walk, and actually, $2,065 by the end of the day. As I posted elsewhere, this says less about me as a fundraiser and much more about the kind and generous friends who are supporting me. I am grateful.

Me, with my wife, Etsuko, by my side. The lime green shirt was because I had raised in excess of a $1,000.

Me, with my wife, Etsuko, by my side. The lime green shirt was because I had raised in excess of a $1,000.

Thank you.