Mother raising awareness about organ donation

This is a repost from the CBC New Brunswick website dated March 24, 2015. The full article mentions a Facebook page, Little Warrior Zaccari, that allows people to follow his journey. Check out his Facebook page here.

Mother raising awareness about organ donation

Nine-month-old Zaccari Buell has rare kidney disease, is a ‘little warrior,’ says Ashley Barnaby

CBC News Posted: Mar 24, 2015 7:21 PM AT Last Updated: Mar 24, 2015 7:21 PM AT

Nine-month-old Zaccari Barnaby, pictured here with his mother, Ashley, is in stage four renal failure. (Kate Letterick/CBC)

Nine-month-old Zaccari Barnaby, pictured here with his mother, Ashley, is in stage four renal failure. (Kate Letterick/CBC)

The mother of a nine-month-old baby with stage four renal failure is hoping to raise awareness about organ donation.

Ashley Barnaby’s son Zaccari Buell has a rare kidney disease called congenital nephrotic syndrome — one of only two known cases in the Maritimes in the last 15 years.

Barnaby, her husband Jeff Buell, and their seven-year-old son Abaddon, left their home in Listuguj, Que., and Zaccari spent his first three months at the IWK Health Centre in Halifax.

He’s being treated at the Moncton Hospital now and gets his kidney function tested at the IWK every month or two. But he is facing dialysis and will ultimately need a transplant, once he’s big enough, said Barnaby.

It has reinforced her belief in organ donation, she said.

“You never quite know how personal it gets until it hits home and then, like I said, for Zaccari it’s going to give him a chance at a bright future — a normal life,” she said.

To read more, click here.

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