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Russ Needs A Kidney

close up RUSS IMG_3748 (1)Hi. I’m Russ Sawatsky and I’ve got two bum kidneys, but one transplant will do. On this site you’ll find out how to give a kidney, get a kidney and save lives.

To find out more about organ donation, scroll down.

To be even more wonderful, sign your organ donation card.

To explore how to get Russ a kidney, please email kidneyforruss@gmail.com.

Another Kidney Transplant for a Co-Worker and Friend

A while after I went onto dialysis in 2014, I learned that a co-worker of mine, Rehana, had also been dealing with kidney disease for decades and had recently begun hemodialysis. Yesterday, I learned that last Sunday, January 22, she had undergone a kidney transplant here in London, Ontario at University Hospital, the same hospital where I had my transplant surgery.

Unlike in my case, Rehana received a kidney from a deceased donor. As is sometimes the case when receiving a kidney from a deceased, rather than a living, donor, Rehana has had to continue with dialysis for the time being, as the transplanted kidney has yet to “wake up.” This delay is not entirely uncommon, but naturally it is a situation that is not ideal. Please join me in hoping and praying for Rehana that her kidney will wake up soon so that she can begin a new life free of dialysis and continue her recovery at home.

Finally, allow me to encourage you to register your consent to be an organ donor so that you can leave a legacy after your death of making a profound difference in the life of someone in need. Find the link to your province or territory here.

Russ Sawatsky

Another couple of steps forward, but another (half?) step back, too

Happy New Year to everyone. I hope the Christmas and New Year holiday season was enjoyable for everyone. Etsuko and I were pleased that all four of our children could be home for Christmas from their various locations.

Today, January 3, 2017, marks a milestone: I went to work! Well, sort of. I got up as early as I usually do, in order to take various medications at the appropriate time, but instead of hanging around at home after that, I got on a bus at 8:25 this morning and made my way to a TD Bank building where I had been working until the summer of 2014, when I had gone onto dialysis and a consequent disability leave. I “worked” a half-day, 9 am – 1 pm. I use the term “work” somewhat loosely as my main task of the day was to simply begin to get into the routine of going from home to work and back home again. Beyond that, getting permissions set up so I could log onto my computer and access email took a bit of time, and then it was a matter of listening to (“shadowing”) calls that my co-workers were taking. As the days go on, presumably a few other things will be added to expand the range of tasks I can engage in. It will be a “gradual” return to work, so two half-days this week, three next week, and so on until I have reached full-time hours the week of February 20.

I’m actually quite excited about the prospects of returning to work because on February 27, I will be part of the first “wave” of employees who will be training for the licensing exam for the Canadian investment industry. For many years, we served US clients and were thus licensed in the US, not Canada, but now we are “coming home” so to speak.

So, today was the step forward. I can also mention that the blood clot has been successfully resolved with only some minor scarring of the affected blood vessel left to show for it. As for the (half) step back, one of the side effects of the immunosuppressant drugs that I had hoped to avoid has in fact come to pass. Some tests that were done by my family physician show that I now have Type 2 diabetes. It’s not severe, and my doctor just told me to restrain myself over the holidays when it comes to simple carbs (minimize the cookies, cakes and candies…). My situation will be followed up at the end of this month, but even so, I gather that the tests do not reveal a very severe level of diabetes. I am also hopeful that as a reduction in some of my drugs is likely to occur over time, the disease might even subside. In the meantime, I feel fine, which is a great feeling indeed.

cantransplant_logo1

I’m not one to make resolutions at the beginning of each year, but I might ask readers of this blog to resolve to sign up as an organ donor, if you have not done so already. The Canadian Transplant Society provides a helpful page with links to the various provincial and territorial registration sites. Please click here to be taken to the site, and take the necessary steps to register.

Thanks,

Russ

It is to weep…1 in 5 willing organ donors have their wishes vetoed

How disappointing it was for me to read this article in the National Post. Even more disappointing for me were all the comments perpetuating myths about organ donation.

Even so, articles like this bring organ donation to the forefront, and encourage people to do two important things: 1. Register as an organ donor; 2. Tell your family that you have registered as an organ donor and that you want their support in the event you suffer life-threatening trauma.

One in five willing organ donors in Ontario have their wishes vetoed by family — and doctors don’t argue

No transplant doctor in Canada has ever gone against a family's wishes despite a signed organ donor card.

No transplant doctor in Canada has ever gone against a family’s wishes despite a signed organ donor card.

Blair Bigham, Special to National Post | November 25, 2016

Toronto — When Heather Talbot saw a police cruiser park outside her home, she braced herself for terrible news. After explaining her 22-year-old son Jonathan was involved in a car crash, police officers rushed Talbot to the intensive care unit at Toronto’s Sunnybrook Hospital, where doctors told her he was brain dead.

“I remember wondering if they would ask about organ donation,” recalls Talbot, who was against the idea.

It wasn’t until a nurse asked about Jonathan’s own wishes that his sister Emily spoke up. The two had gotten their drivers licences together, and she recalled Jonathan signing the organ donor card that came with it.

“I wanted to respect his decision,” says Talbot.

Talbot came to accept her son’s wishes, but often, families feud over whether to respect previously declared wishes around organ donation.

Click here to continue reading.

A somewhat oddly timed thanksgiving

Two months ago, in September, Gerald Neufeld donated a kidney to a person in need in British Columbia, closing the loop on the Paired Kidney Donation program that we had entered into, he as a donor and me as a recipient. This is the first time I have mentioned Gerald’s name in any of my blog posts. The transplant coordinators generally want to keep these matters confidential for the first several weeks following the actual transplant. Sadly, sometimes if direct donors and recipients find out about each other, the altruistic nature of the donation can become a bit weird. But, enough time has passed that I have been released from this constraint.

Gerald Neufeld, my donor in the Paired Kidney Donation program.

Gerald Neufeld, my donor in the Paired Kidney Donation program.

Rie Neufeld, Gerald's wife and among many other things, caregiver following Gerald's kidney donation surgery.

Rie Neufeld, Gerald’s wife and among many other things, caregiver following Gerald’s kidney donation surgery.

 

 

 

 

 

 

 

Before I go on, I want to mention once again another person in British Columbia, someone I had known for many years, who had also volunteered as a donor for the paired exchange program. Ultimately, I only need one kidney to thrive and therefore only one donor, and so this other friend did not become a donor. Nevertheless, I wish to thank him for his willingness, along with his wife for her support. The encouragement I received, the depth of emotion I felt whenever I spoke with him as he accompanied me on this journey across thousands of kilometres, will remain in my heart forever.

Back to Gerald. Gerald’s connections with me and Etsuko are perhaps not quite as old, but they are every bit as significant in a different way. We shared some years together as former missionaries in Japan. As with me and Etsuko, Gerald also met his wife Rie on the other side of the Pacific. And although we didn’t have a whole lot to do with each other at the time, several years earlier we even spent a year together as fellow students at Canadian Mennonite Bible College (now Canadian Mennonite University) in Winnipeg. Who would have thought that so many years later (we returned from living in Japan a final time in 2000) we would establish a new life-transforming connection like we have experienced in 2016.

In the caption below Rie’s picture, I mentioned that Rie was Gerald’s caregiver following his surgery. Although Gerald was discharged from the hospital in a timely manner, recovery is something that still takes a number of weeks before a return to work is possible. For that reason, Gerald received support from his employers, Emmanuel Mennonite Church in Abbotsford, BC, where he is music coordinator, and the Mennonite Japanese Christian Fellowship in Surrey, BC, where he serves as pastor.

Thank you, Gerald and Rie, thanks to your three children, and thank you to your church communities for all that you have done, not just for me, but also for raising awareness of the need for organ donation.

I will add a small note about my situation these days. Recovery from the blood clot in my right leg continues but I hope to have that fully resolved by December. Last week I went to the kidney clinic as I have been doing every two weeks for quite some time. After reviewing the results of my blood test, the nephrologist I saw that day pronounced me fit and said that he wanted to see me next in two months! And then he told me that he would have suggested three months except that he was concerned it would “freak (me) out.” It almost did. Wow. By then it will be just short of the six month anniversary since my transplant.

I really am making progress. This past Friday, Etsuko and I went to Sarnia (about an hour west of London, ON) for an overnight stay at a hotel and a very pleasant walk along the waterfront. Friday was apparently the last nice day before winter began to settle in, but one of the main reasons we went away on this little trip was because we had to burn up some Air Miles before they expired at the end of this year (yes, we are among the many Canadians forced to use our points whether we want to or not). It turned out to be a great day, and it was my first time away from home in two years without having to haul along a bunch of equipment and supplies for dialysis. What a sense of liberation that was.

So, lots of reasons to be thankful! But today I want to say I am mostly grateful for people like Gerald, people willing to be living donors, as well as those who support them. Not everyone is willing to be a living donor, or even if willing, able to take such a step because of health limitations, but today you can register as an organ and tissue donor following your death. Here is the URL that provides links to all of the provincial and territorial donor registration sites: Canadian Transplant Society. Please register and make a difference. Thank you.

 

A Follow-Up: “I donated a kidney. I have no regrets.”

A few days ago I reposted an article from the Washington Post written by Michael Poulson, who had regretted donated a kidney at age 18. Here is a “Letter to the Editor” from a living donor, Macey Henderson, who at age 24, donated a kidney to her 36-year-old cousin. To what might we attribute the difference in their attitudes?

I donated a kidney. I have no regrets.

When I was 24, I gave a kidney to my 36-year-old cousin who had been on dialysis for two years, and I have no regrets.

I respect Michael Poulson’s lifesaving kidney donation and his desire to better understand the risks of donating, but aspects of his article were misinformed.

As a research scientist who actively studies risk after living donation, I can report that data show that more than 95 percent of donors are satisfied with their donation decision.

I am not scared about the risk of kidney failure after donating. Mr. Poulson stated that we do not know how many people donate and how many of them develop kidney failure, but that was incorrect: There are national data sources for both of these, and research has been published based on almost 100,000 donors showing that kidney failure risk after donating is a tiny 0.3 percent.

I spend my days thinking not of my remaining kidney but of ways to design a better transplant system, in which live donor care is optimized.

Macey Henderson, Gaithersburg

The writer is a member of the national
transplant network (United Network for
Organ Sharing) Living Donor Committee.
The views expressed are her own.

One (somewhat painful) step back

Yesterday, Tuesday, October 4, I was at University Hospital for my regular nephrology clinic appointment. I mentioned to the doctor that I had been having some pain in my right leg for the last few weeks. I had put it down to excessive enthusiasm for walking following my surgery, which had also caused plantar fasciitis (now more or less resolved). Since it wasn’t subsiding, I wondered if it might be something else, like a blood clot. Well, in short order I was sent off to the Radiology department to have an ultrasound done.

The ultrasound technician was very thorough, working from the top of my leg to the bottom. She told me she spotted “something.” As a result, even though I had walked to radiology, I was now told I had to be taken back to nephrology in a wheelchair.

onestepback

The upshot of all this: Yes, I have a blood clot. I will now be on daily injections of Fragmin ( a blood thinner) for the next three weeks and I will also be referred to the Thrombosis clinic for followup.

While I would have preferred to have learned that it was just a sore calf muscle, I am glad that the true cause of the pain was discovered and is now being treated. Even better, the doctor said I could continue to walk…so I walked home from the hospital, about 30 minutes.

In other matters, the clinic appointment was uneventful. I continue to make progress toward healing. Thank you for your continued support, good wishes and prayers.

At 18 years old, he donated a kidney. Now, he regrets it.

This article  was originally published in The Washington Post on October 2. This is not an article I am particularly fond of. A living donor now regrets the decision he made at age 18. As the recipient of a kidney via living donation, and knowing of at least a couple of people who were willing to donate a kidney anonymously (sometimes referred to as an undesignated or altruistic donation), it troubles me that Mr. Poulson now regrets his decision. It also troubles me that living donors may be putting their lives at risk beyond the immediate risk of the surgery itself. Even so, I think this is worth reading the perspective of a young living donor. Please note that this is article is particularly applicable to the US context.

You may or may not want to read the comments following the article, however. Some are disheartening and mean-spirited. Others are encouraging.

By Michael Poulson
When I was 18, my stepfather’s brother had been on dialysis for just over a year. He was thin, he exercised regularly and he seemingly was in perfect health, but inexplicably his kidneys began to fail him. Although I was just about to leave for college, I’d heard enough about the misery of dialysis to decide to get tested as a possible donor. In the back of my mind, I knew that the chances of our compatibility were incredibly low because we were not related by blood. Perhaps that made it easy for me to decide to get tested.

When we received the results, I was stunned to find out that he and I were a match. The transplant team gave me plenty of opportunities to back out of the donation, and it put me through countless evaluations, physical and psychological. Much of my family was steadfast against my becoming a donor. Looking back, who could blame them? Their son-grandson-nephew was going to undergo a major operation with no benefit to himself.

However, I continued to be confident in my choice. I relied on the one fact that would be repeated to me many times: “The rate of kidney failure in kidney donors is the same as the general population.” Why wouldn’t everyone donate a kidney, I wondered.

My mother was the only one to — reluctantly — support my decision. She accompanied me to San Francisco, where the surgery took place, and we settled in for the weeks that I would spend recovering. On the day of the surgery, anesthesia flowed into my arm and the world swiftly slipped away. Then, just as quickly, it seemed, I awoke, nauseated and confused. So much preparation for such a short nap. The anxiety I’d felt about the surgery was now gone — as was one of my kidneys.

An uneventful recovery came and went. I returned to college and resumed a normal life. Likewise, my step-uncle did very well and is living a full and healthy life, as is my donated kidney.

Michael Poulson regrets giving that kidney away. (University Photo)

Michael Poulson regrets giving that kidney away. (University Photo)

Five years after the surgery, when I was 23 and getting ready to go to medical school, I began working in a research lab that was looking at kidney donors who had gone on to develop kidney failure. For that research, I talked to more than 100 such donors. In some cases, the remaining kidneys failed; in others, the organ became injured or developed cancer. The more I learned, the more nervous I became about the logic of my decision at age 18 to donate.

Click here to read more…